In Gainsville for Transplant

So where do I start? Umm Lets go back two days. We were going to do a proceedure to tell weather we were going to have surgery or a transplant. They came in on Tuesday and said that they did not want to do the procedure becuase it involed putting her to sleep and they were worried she would not come out of it. So the plan became on Tuesday to move to Gainsville on Wednesday. We were then told that night that they already have 5 kids waiting for hearts in Gainsville, that our chances of getting a heart any time soon would not be large, and that we could start up the paper work and labs in Jax and stay there till a heart arrived unless her situation got worse. Well that night that is exactly what happen. She kept destating all night. Then at 6am I fed her a bottle and she destated only this time we could not get her to recover.
This is when all the craziness began. The room quickly became full of doctors, nurse's, and surgeons, trying to figure out what would be the best plan. At one point we were doing surgery, the next moving to gainsville. They finally got her somewhat stable by 10am after going back and forth for 4 hours.
They wanted to go by helicpoter because they wanted her to get there as quickly as possilbe. Of course we were have a huge strom with tornado watches. They did not want to wait till the next day to transport. The doctor on the floor called in the on call doctor and he dedided he was going to leave and take the ride with Grace in the abulance with the parimedics in case anything happen along the way.
Thank god, she made it fine to Gainsville. I was not allowed to ride in the back with her. So I decided to follow in my car so I would have transportation. I stopped home first to give Emily a kiss and hug. Then off to Gainsville. When I arrived Grace had already been there for two hours. She was still not stable, so they made me wait another hour before they came to get me.
The into the confrence room we went. Our conversation was about the transplants. They expressed how they do do mechincal hearts here, but it was not a option for Grace. Disappointment one! They then went on to explain how critical she actually is. Also how they have so many kids here waiting for hearts. Graces blood type is a O, they also have two other kids here that are O and need the same size heart. They did say though it comes down alot to the antibodies that the kids have delevoped and that besides blood type and size, it doesn't matter how long a kid has been here if they look like they will fit the heart better than another they are the one that will get the heart. They did continue on also to say how alot of parnents don't always continue on when it comes to a transplant because, they don't want to deal with waiting for a heart, then the fact it may be rejected in the first few months. They have children that are in there 20's with the same heart. But if you go by the books the heart should last 5 to 10 years, and you can only get 2 hearts in your life. The parents can't bear to come back and go through this again so soon. There is also if the heart fails, when they bring her back it could cause serve brain damage.  They asked us the question, if her heart fails do they want us to resesatae her? I was shocked to hear this question? Give up now? We made that decsion at 6 months pregnet, that if we were going to do this we were going the whole way no matter what. I told them that thaat was not a option. We wanted everything possible to be done that could be done.
We put the breathing tube in today along with a few other proceedures, with the goal in mind to stablize her. These were all risky, but once again Grace, is amazing and desipte some small details came through with flying colors.
So know the hardest part. Obvesily she could turn at any point, and also there are other problems that can come when you wait in a bed unconsecces for a heart for months, but if we can get through this, we just need to pray for a heart.
Kirk and I gave blood and did our test's today, and the process has been started.
All we can ask is to pray! Pray! Pray! It is all a waiting game now.