Sunday, July 31, 2011

We GOt a Heart!!

On July 26, 2011 Kirk, Emily and I were in Grace's room hanging out when Doctor Fricker walked in at 9:15p.m. We had come to the point where we were feeling like we were never going to get a heart. Discouraged is not even the right word to explain it!
Doctor Fricker proceeded to tell us "we think we have a heart!" Its hard to even remember that first feeling, I felt the tears coming to my eyes and tried to fight them off, I had know from previous stories to not get excited. Alot could happen from that moment to the moment when the heart got here to make it fall through. After doctor Fricker left I looked at kirk and was speechless. We started to make plans for Emily and kept reminding each other not to get to excited!
Kirk drove emily back to St Augustine to stay with her Grandmothers. I held grace that night till almost right up to when they took her for surgery, at 4:30a.m.  Around midnight I started getting excited and sending out textes and phone calls. I couldn't believe that moment finally came.
At 4:30a.m. on July 27, 2011 I walked Grace down to the OR. It was her first surgery I didn't cry saying goodbye. I can't explain the feeling. I was definately scared but I think the excitement overwhelmed those tears!
They had Grace down stairs till 3:00p.m. that afternoon. When she came back up she looked like a different baby! She was pink, not blue anymore! She looked amazing! We had one scare about two after we came up, she started had irrgular  rythms in her heart. The hooked the pacing wires up to the machiene and began to pace her heart. It fixed the issue imediately! Since then she has been great! She is still in alot of pain, but it seems to get better with everyday! We are hoping to go home in a month.
The main issue that we think we are going to face is eating. Grace hasn't eaten in four months. The feeding tube has been feeding her intestints. They said the worse cause would be she would be sent home on a G tube, that would be attached surgically in her stomach. If this is the worse thing then I will take it!! We will see time will tell!
Thank you again for everyone's thoughts and prayers! I will try and update again soon!